Sunday, March 20, 2005

I have what now?

1997 was the last time I got sick. I had a sinus infection, bronchitis, an infected throat and a high fever. The doctor insisted on an X-ray, telling me he thought he heard something in my lungs. I said it was likely a Kleenex. I have had nothing contagious since. I spent years after that in CPS with snotty kids, kids with lice, sick kids and parents hugging me and kissing me, hours in schools, hospitals, courts, police stations. I got nothing. Not even the lice. Go figure.

However, since then my white blood cell count has gone up and down. Most of the time I am tired. I can't sleep, but I am tired.

Due to arthritic pain, I was sent to a rheumatologist. He said I have fibromyalgia. That is a syndrome which includes pain and exhaustion. The pain is deep towards the bones, not just the joints. It's an ache that doesn't go away. He said if my blood tests were different he would think I might have lupus.

Thursday I saw a different rheumatologist who looked at me and suddenly said, "you have lupus." No warning, no lead up to it. Just, "you have lupus." I told him I am tired most of the time, and he said, "Of course you are tired. You are sick." I looked at him, and said, "No. I am not sick. I am healthy." I wanted to add, "You old coot," but did not. I think attitude counts, and I think I am healthy.

This second-opinion board-certified rheumatologist asked me what pets I have, what breed my dogs are, and how much they weigh. He asked me if my red hair is natural. He felt my ankle for the pulse in it, then took off my sock and just sort of held my foot. Ewww. He did not ask me how my endurance is, how much I sleep, where I hurt or how much. He did ask me which school I got my master's degree from and in what field. I told him my daughter is a waitress and he said he was sorry that she is a disappointment. I never said she is. I am proud of my daughter. She is a bright, happy, healthy, beautiful, cheerful, if messy, daughter and I love her very much. She drives me nuts sometimes, but she is in no way a disappointment.

So I have spent the last few days thinking about what it means to have a diagnosis of lupus and if I want to take Plaquenil as he suggested. I don't think I do. He said it would stop the pains, stop my hair from thinning (you have seen pictures of my hair, I still have plenty), and help with my tiredness. It is a medication for malaria. It can have serious side effects.

I am starting to consider either a third opinion or just ignoring the whole thing. I don't get sick. I find it hard to believe my immune system is compromised. Perhaps I don't understand the issue, but I don't feel sick. I feel pretty damn healthy. I think he is wrong.

 

14 comments:

Anonymous said...

Ignore the second and get a third.

God Bless,
TiasNme2

Anonymous said...

He may be wrong. My mom has fibromyalgia, I would get a third opinion, maybe even a forth.
Please dont just ignore it.
hugs and love,
Kathi

Anonymous said...

I'd go for a  3rd opinion!  I was told I had Lupus once too, then I went to another doc and he never found any indication.

Monica
http://journals.aol.com/sonensmilinmon/SmilinMonsAdventures/
http://journals.aol.com/photographybymon/Mamarazzi/

Anonymous said...

I agree, I 'd ask another doctor.  These things are so hard to diagnosis.  And as for your doctor's comments about you daughter he needs to back off!!  What a pompis jerk...sorry I am never impressed by doctors.  rose

Anonymous said...

Good lord what an old coot! lol.  Please get a seecond (third) opinion.

Anonymous said...

Get another opinion sweetie.
Your right...That drug does
have some serious side effects,
but for patients with Lupus it
works well.
Connie

Anonymous said...

Get another opinion.
This guy didn't even bother to listen to what you were saying..I wouldn't take the meds until you can get another opinion.

~Heather

Anonymous said...

     Where do you go in the medical world to get an opinion from an intelligent, caring Doctor who listens to all you have to say?

     Sorry, Suzy.  I don't have any advice.  However, it infuriates me that he would dare to say that about your daughter!  I admire your daughter for the timing and grace it must take to be a waitress.  
      It's a good thing Doctors don't have to depend on tips on their services!

      Hope you get to feeling better!

Best wishes,
Debi

Anonymous said...

Go to a dermatologist to accurately diagnoise lupus. Can't find one? Well, just fly on over to Kansas City and I'll get you in to see one.....no wait. I think that Dr. is an idiot as well as an ole coot!  Anne

Anonymous said...

I think I'm following in the same vein as everyone else...get as many concurring opinions you can.   Sadly, Lupus isn't one of the diseases you can ignore.  If I remember correctly, fibro mimics Lupus (and a host of other diseases).  Such a sorry disease, can't even have it's own symptoms.  :)

Thinking about you.  ~Peachy

Anonymous said...

No ignoring this kid!
Off for that 3rd opinion!
   *** Coy ***


Anonymous said...

Attitude is everything. But knowledge is power. I'm sorry you're going through such a confusing chain of events. Take care of yourself, first. Medical training may not lend itself to bedside charms. There was no need for him to get personal. Let that go. The medical opinion, I would not ignore. Someone so abrasive probably is pretty smart.

Anonymous said...

I'd go for the 3rd opinion.  I think it's something you need to know for sure.

Anonymous said...

I was tested for lupus too - i learned during that process that it is one of the single most incorrectly diagnosed illnesses. I say ask for a third opinion. I'd also say try to get the name of a rheumatologist from someone you know. Do you know anyone else with lupus, rueumatoid arthritis or gout??